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The RASopathies Network USA, based in Altadena, CA, is a leading organization dedicated to raising awareness and providing support for individuals and families affected by RASopathies syndromes. With a mission to advance research, education, and advocacy, they bring together clinicians, researchers, and patients to foster collaboration and improve the lives of those impacted by these rare genetic disorders. Through their extensive network of clinicians and researchers, the RASopathies Network USA offers a wealth of resources, including a comprehensive directory of RASopathy clinicians worldwide, scientific meetings, publications, and research studies. Their commitment to empowering patients and their families is evident through initiatives such as the Patient Contact Registry and outreach programs, ensuring that individuals affected by RASopathies have access to the latest information and support. With a focus on global collaboration and advocacy, the RASopathies Network USA continues to make significant strides in advancing research and improving care for those living with RASopathies syndromes.Generated from the website