EB Research Partnership is a non-profit organization based in New York, NY, dedicated to finding a cure for Epidermolysis Bullosa (EB), a rare and debilitating genetic skin disorder. Through their impactful research, clinical trials, and resources, they strive to improve the lives of those affected by EB.
With a strong scientific advisory board and community council, EB Research Partnership actively encourages involvement from individuals and organizations through grants, donations, and sponsorship of EB active events. Their mission is supported by a dedicated team of leaders, including board members and staff, who work tirelessly to advance the cause and provide hope for a future without EB.
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